Friedreich's ataxia impact scale: A new measure striving to provide the flexibility required by today's studies
Identifieur interne : 002301 ( Main/Exploration ); précédent : 002300; suivant : 002302Friedreich's ataxia impact scale: A new measure striving to provide the flexibility required by today's studies
Auteurs : Stefan J. Cano [Royaume-Uni] ; Afsane Riazi [Royaume-Uni] ; Anthony H. V. Schapira [Royaume-Uni] ; J. Mark Cooper [Royaume-Uni] ; Jeremy C. Hobart [Royaume-Uni]Source :
- Movement Disorders [ 0885-3185 ] ; 2009-05-15.
Descripteurs français
- Pascal (Inist)
English descriptors
- KwdEn :
- Adolescent, Adult, Affect, Aged, Aged, 80 and over, Evaluation Studies as Topic, Evaluation scale, Extremities (physiopathology), Female, Friedreich Ataxia (diagnosis), Friedreich Ataxia (physiopathology), Friedreich ataxia, Friedreich's ataxia, Health Status, Health Surveys, Humans, Male, Middle Aged, Movement (physiology), Nervous system diseases, Psychometrics (methods), Quality of life, Questionnaires, Rasch analysis, Reliability, Severity of Illness Index, Speech (physiology), Validity, Young Adult, quality of life, rating scale, reliability, validity.
- MESH :
- diagnosis : Friedreich Ataxia.
- methods : Psychometrics.
- physiology : Movement, Speech.
- physiopathology : Extremities, Friedreich Ataxia.
- Adolescent, Adult, Affect, Aged, Aged, 80 and over, Evaluation Studies as Topic, Female, Health Status, Health Surveys, Humans, Male, Middle Aged, Questionnaires, Severity of Illness Index, Young Adult.
Abstract
To develop, using modern techniques of rating scale construction, a new patient reported rating scale for clinical studies of Friedreich's ataxia (FA) that strives to meet the measurement needs of different types of study. Qualitative research methods were used to generate a conceptual framework of the impact of FA, and a pool of items necessary to construct a subscale for each area identified. This item pool was then administered to 492 people with FA. Rasch measurement methods guided scale construction. Eight areas for measurement were identified (speech, upper limb functioning, lower limb functioning, body movement, complex tasks, isolation, mood, self perceptions), and a 126‐item scale constructed (FA Impact Scale; FAIS). In addition, three shorter versions were developed to illustrate how the FAIS can be adapted for observational studies, more disabled, and less disabled samples of people with FA. The FAIS is a psychometrically sound 126‐item measure from which subsets of items can be selected to meet the needs of different studies. Importantly, all versions can be referred back to the original scale. This study shows one of the many clinical advantages of using Rasch measurement methods to construct rating scales. © 2009 Movement Disorder Society
Url:
DOI: 10.1002/mds.22420
Affiliations:
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Disord.</title><idno type="ISSN">0885-3185</idno><idno type="eISSN">1531-8257</idno><imprint><publisher>Wiley Subscription Services, Inc., A Wiley Company</publisher><pubPlace>Hoboken</pubPlace><date type="published" when="2009-05-15">2009-05-15</date><biblScope unit="vol">24</biblScope><biblScope unit="issue">7</biblScope><biblScope unit="page" from="984">984</biblScope><biblScope unit="page" to="992">992</biblScope></imprint><idno type="ISSN">0885-3185</idno></series><idno type="istex">63BB8EF6AF3F81B6230F6A25EB58443369A2BFEB</idno><idno type="DOI">10.1002/mds.22420</idno><idno type="ArticleID">MDS22420</idno></biblStruct></sourceDesc><seriesStmt><idno type="ISSN">0885-3185</idno></seriesStmt></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Adolescent</term><term>Adult</term><term>Affect</term><term>Aged</term><term>Aged, 80 and over</term><term>Evaluation Studies as Topic</term><term>Evaluation scale</term><term>Extremities (physiopathology)</term><term>Female</term><term>Friedreich Ataxia (diagnosis)</term><term>Friedreich Ataxia (physiopathology)</term><term>Friedreich ataxia</term><term>Friedreich's ataxia</term><term>Health Status</term><term>Health Surveys</term><term>Humans</term><term>Male</term><term>Middle Aged</term><term>Movement (physiology)</term><term>Nervous system diseases</term><term>Psychometrics (methods)</term><term>Quality of life</term><term>Questionnaires</term><term>Rasch analysis</term><term>Reliability</term><term>Severity of Illness Index</term><term>Speech (physiology)</term><term>Validity</term><term>Young Adult</term><term>quality of life</term><term>rating scale</term><term>reliability</term><term>validity</term></keywords><keywords scheme="MESH" qualifier="diagnosis" xml:lang="en"><term>Friedreich Ataxia</term></keywords><keywords scheme="MESH" qualifier="methods" xml:lang="en"><term>Psychometrics</term></keywords><keywords scheme="MESH" qualifier="physiology" xml:lang="en"><term>Movement</term><term>Speech</term></keywords><keywords scheme="MESH" qualifier="physiopathology" xml:lang="en"><term>Extremities</term><term>Friedreich Ataxia</term></keywords><keywords scheme="MESH" xml:lang="en"><term>Adolescent</term><term>Adult</term><term>Affect</term><term>Aged</term><term>Aged, 80 and over</term><term>Evaluation Studies as Topic</term><term>Female</term><term>Health Status</term><term>Health Surveys</term><term>Humans</term><term>Male</term><term>Middle Aged</term><term>Questionnaires</term><term>Severity of Illness Index</term><term>Young Adult</term></keywords><keywords scheme="Pascal" xml:lang="fr"><term>Echelle d'évaluation</term><term>Fiabilité</term><term>Hérédodégénérescence spinocérébelleuse de Friedreich</term><term>Pathologie du système nerveux</term><term>Qualité de vie</term><term>Validité</term></keywords></textClass><langUsage><language ident="en">en</language></langUsage></profileDesc></teiHeader><front><div type="abstract" xml:lang="en">To develop, using modern techniques of rating scale construction, a new patient reported rating scale for clinical studies of Friedreich's ataxia (FA) that strives to meet the measurement needs of different types of study. Qualitative research methods were used to generate a conceptual framework of the impact of FA, and a pool of items necessary to construct a subscale for each area identified. This item pool was then administered to 492 people with FA. Rasch measurement methods guided scale construction. Eight areas for measurement were identified (speech, upper limb functioning, lower limb functioning, body movement, complex tasks, isolation, mood, self perceptions), and a 126‐item scale constructed (FA Impact Scale; FAIS). In addition, three shorter versions were developed to illustrate how the FAIS can be adapted for observational studies, more disabled, and less disabled samples of people with FA. The FAIS is a psychometrically sound 126‐item measure from which subsets of items can be selected to meet the needs of different studies. Importantly, all versions can be referred back to the original scale. This study shows one of the many clinical advantages of using Rasch measurement methods to construct rating scales. © 2009 Movement Disorder Society</div></front></TEI><affiliations><list><country><li>Royaume-Uni</li></country><region><li>Angleterre</li><li>Grand Londres</li></region><settlement><li>Londres</li></settlement></list><tree><country name="Royaume-Uni"><region name="Angleterre"><name sortKey="Cano, Stefan J" sort="Cano, Stefan J" uniqKey="Cano S" first="Stefan J." last="Cano">Stefan J. Cano</name></region><name sortKey="Cano, Stefan J" sort="Cano, Stefan J" uniqKey="Cano S" first="Stefan J." last="Cano">Stefan J. Cano</name><name sortKey="Cooper, J Mark" sort="Cooper, J Mark" uniqKey="Cooper J" first="J. Mark" last="Cooper">J. Mark Cooper</name><name sortKey="Hobart, Jeremy C" sort="Hobart, Jeremy C" uniqKey="Hobart J" first="Jeremy C." last="Hobart">Jeremy C. Hobart</name><name sortKey="Hobart, Jeremy C" sort="Hobart, Jeremy C" uniqKey="Hobart J" first="Jeremy C." last="Hobart">Jeremy C. Hobart</name><name sortKey="Riazi, Afsane" sort="Riazi, Afsane" uniqKey="Riazi A" first="Afsane" last="Riazi">Afsane Riazi</name><name sortKey="Schapira, Anthony H V" sort="Schapira, Anthony H V" uniqKey="Schapira A" first="Anthony H. V." last="Schapira">Anthony H. V. Schapira</name></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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